The Path To The
Kingdom of HS
Once upon a time there was a great land, a land so large that noone knew where it began or ended. It was beautiful here in this land, and the Kingdom that ruled it was like a sight that only a few had seen.
If you entered the Kingdom there you found promise in the beautiful flowers that never faded or died. You could look into the sky and clouds of blue, green, and rose with Rainbows that covered the earth.
The trees were of berries which you could eat as you walked along, and the water that flowed from fountains was so pure that even crystal could not stand up to the purity of the great waters. Every flower that could be was found here upon the pathways of the gardens, gentle blues to calm the soul, yellows of every color made you feel like its friend. Every color of the earth and more lay before the person that walked the paths.
I had heard of the Kingdom many times throughout my life, but I was told that noone could enter except on request. To my surprise a man in dark velvet delivered me such a letter, and upon it read: "The Great Land Awaits You, We Welcome You Here".
Here I am on a journey through the most beautiful and glorious place that I have ever seen. I can not tell you in words the majestic beauty that I have found here. I do know that my heart is racing wondering why I was invited.
There are no signs here to guide one, and there are many different paths that I might take, but in each turn that I take or each path that I see something catches my very soul to lead me down that narrow little lane.
The streets remind me of marshmellows that I had as a child, all white and fluffy and bouncy. Yes I said bouncy, for as you walk it feels like you are walking upon marshmellows, and sugar and candy I can smell.
I have met no other here since I entered, and I wonder if I will walk alone aimless lost here in this magnificent place. But except for leaving my family I would not care, I could abide here forever it is so wonderful.
I can hear the tinkling of water all around as it glides through the fountains, fountains that look as if they have been sprinkled with dust. Not dirty dust, but Magical Stardust!!! The trees here whisper to me come in and be welcome, you can hear it in the breeze as it whisks your hair around your face. The sun upon my skin feels smooth, almost like a very gentle spring rain. I reach to touch my face and I smell lavendar upon my skin.
The colors have begun to change on my journey, now deep pinks and crimsons I see the red on the tips of the flowers and they look like the setting sun in the west.
I must take that path those are my favorite colors, they cheer me and make me feel whole inside. My eyes can not even take in all of the color as I turn my head from side to side. The path is getting wider and the marshmellows softer, I feel like I am gliding now, I don't even have to make an effort to move my legs it is as if I am in water and it is drawing me.
Look at that the colors are changing now once again to golds that glimmer brighter than the sun, and purple flowers are everywhere. Purple the color of royalty. I must be getting close to something!!!
In the distance I can hear bells tinkling softly, and gentle laughter fills my ears, but I can not focus on that for the beautiful picture that I see. The breeze still softly whispers to me, and a feeling that I have never had washes over me.
I feel alive for the first time that I can remember. I can jump and bend and it seems like the wind is pushing me at my back.
Another path that is even wider than the last calls me, and the purples and pinks are so brilliant that my skin looks healthy, my skin looks happy!!
The bells are louder now, the laughter more steady to my ears, I can not be far. I can sense that I have been traveling for years, but it feels just like a moment since I entered here.
The path narrows now and as I am about to turn the trees open and I see all of the paradise where I have entered. The Kingdom I had always heard of was here, before me.
Up above me on a mountain stands a Castle that I see, but yet my mind can't make out to be real, it is so enchanting, magnificent, beautiful, "NO, there are no words to describe it". I can see someone waving for me to come closer. I am not afraid, but do not understand why someone such as I could ever have this pleasure of being here.
I'm flowing now down the white sugary road, and I can see that there are several waving to me with something in their hands, but I don't know what it is. It is bright, brighter than the sun on water, but I know that I must go.
I can make out what the whisper of the breeze was telling me, it says you are home now, never alone, you have found friends that understand you.
I start to cry and the beautiful lady on the stairs glides to meet me, as the crowd parts for her.
In my hand she said lies the key to this wonderful land, all you have to do is wave it and the kingdom is yours.
My name is Haven, I am like you. I was once all alone with noone by my side to see my shame or hear my cries. I gathered a Land full of beauty unknown, and I call this Kingdom HS. She turned to the side and there I could see, the Doors of the Castle were open for me.
One by One we entered and rare visions I saw, as she laid the key in my hands and told me their law.
HS is for Havenly Safety for all, that disease can not enter these Heavenly halls. Now my dear as she pulled out my chair, here with us you will live and give us your cares.
The key to this city is not a key at all, but a wand so magical pain and sorrows all fall,
When you are sad, feel alone, hysterical from pain, just give this a wave and like magic it goes from hence it came.
For you have found the magical Kingdom herein, the Land that is ours, noone else has ever seen.
TnHavenforHsers.
We are a Kingdom of lives traveling one path,
Although we have suffered other peoples wrath,
Here we are safe, no one can enter our doors,
Unless invited, to share our souls.
The HS Kingdom
Written By Lynette
VETERANS OF ALIEN WARS
To my Beloved family, I am a Veteran of many Wars most of which no one has heard of. Although I am not yet half a century old, I have fought in major campaigns of warfare, but not with the standard ammunition which comes from artillery. I have not ever received the Purple Heart for my many wounds, nor the Prisoner of War Medal, although I have never left my tiny cell from which I am held prisoner.
No Honors or Medals will I receive, only scars from wounds, some old and healed, but they still hurt, and new ones each week and month that are fresh, open, and bleeding. Wounds that will stay here forever to remind me that war will never end, not for me anyway.
Each day I face my enemy in the defense position, never knowing when, where, or how the enemy will strike. I hold my head up as high as I can ready to meet the challenge of battle, yet, always knowing the stench of fear.
I fight back with not guns, but with my medic-pack which is never far from my side. Medi-wipes and gauze, clindamycin lotion and tea tree oil, and the Sherman Tank Zinc, are only a few of the secret weapons I use to kill my enemy.
No I am not the Doctor or the Nurse of my battallion, just a trained medic who has made it through many major war campaigns. For my wounds that not even myself can see, the pain, the aches, the schrapnel, Tylenol, Demorol, are my Grenades
Each night when I try to lay down and go to sleep, I raise my arms to slip my gown on and I see .............
That I carry my own Purple Hearts with me always, on my body, from wounds that will never be completely erased. They are there hidden, all I have to do is look to see them.
My Prisoner of War Medal? It will be there when I again awake, for my body is my Prisoner..................
It is a Prisoner of Alien Enemies
Aliens
HS
Hide
Hidradenitis Suppurativa
For all of the our veterans that fight in the HS War Each Day.
Written by Lynette
ABOUT MY HS DISEASE
SO OTHERS MIGHT
KNOW HOW I FEEL
Right before Christmas "04" the Tnhavenforhsers Group
was fooling around each of us writing our own lyrics to the sounds of Christmas, you can view them here. We all had fun and great laughs from it, and it was a great stress reliever from the HS. Here is mine but the others there are much better, so go have a look. Although it was in the Tn. Group they were written by people in Al. Ky. and Tn. Hope I didn't leave a State out.
Squeezing Around On An HS Lump
to the tune of Rockin' Around The Christmas Tree
to the tune of Rockin' Around The Christmas Tree
Squeezing Around on an HS Lump, at the Christmas Party Rock,
Shouting Please! Can't take it no more, I have really got to stop!!
Something smells and it aint the tree, but it surely can't be me!!
Someone's hollering way up high sounds like I'm singing way off key!
If this thing will only POP then the Champaigne will taste fine,
But this thing just looks at me and says you aint gonna have a good time.
Well I'm Squeezing Around on an HS Lump, at the Christmas Party Rock,
Now it's shouting back at me I'm gonna blow if you don't Stop!!!
With a gush and much relief it goes sailing through the air,
All around the Christmas Tree and on the presents wrapped with care.
But oh the Champaigne it tastes so good and boy I'm feeling great,
Cheers to me it didn't win Christmas Time for us wont be late!!!
Shouting Please! Can't take it no more, I have really got to stop!!
Something smells and it aint the tree, but it surely can't be me!!
Someone's hollering way up high sounds like I'm singing way off key!
If this thing will only POP then the Champaigne will taste fine,
But this thing just looks at me and says you aint gonna have a good time.
Well I'm Squeezing Around on an HS Lump, at the Christmas Party Rock,
Now it's shouting back at me I'm gonna blow if you don't Stop!!!
With a gush and much relief it goes sailing through the air,
All around the Christmas Tree and on the presents wrapped with care.
But oh the Champaigne it tastes so good and boy I'm feeling great,
Cheers to me it didn't win Christmas Time for us wont be late!!!
By Lynette
bravenet.com