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Tnhavenforhsers

NEW CHECK OUT
THE PATH TO THE KINDOM
OF HS
UNDER MY WRITINGS
HOPE YOU ENJOY IT
AND DON'T FORGET TO SIGN MY GUESTBOOK

Why should SSD take many months and years to get to the final decision?  This is a waste of Tax payer money, and energy. It leaves many people having to take alternative measures for housing, bills, and everyday things such as eating.
 
It needs to stop please write your Congressman, Senators, Governors today.
 

 
New Havenly Home Remedies
Have Been Added

 
FM Sufferers, CFS Sufferers, and yes maybe even HS Sufferers, could a depletion of MG be causing some of our symptoms?
Tetany, yes it happens in Humans also is a depletion of Magnesium in the body and could be linked to many FM and CFS Symptoms, not a cure for either, but could help some of our Symptoms?  Here is a Wonderful link that discusses MG Loss and Tetany in CFS and FM patients.
http://www.mgwater.com/clmd.shtml
Have you had your Electrolytes Checked?

 
Do You Work and have to Miss Work because of a Chronic Health Condition?
Then you should visit http://www.dol.gov/esa/whd/fmla/
Here you will find the form to take to your Dr. so that you can get your 12 weeks of FMLA.  Please Read all of the FMLA Federal Guidelines, and your State FMLA Guidelines also.

 
IF YOU ARE NEWLY DIAGNOSED, PLEASE TAKE IT SLOW, TOO MUCH INFO AT ONE TIME CAN BE OVERWHELMING AND FRIGHTNING.  REMEMBER THAT THE INFORMATION WILL STILL BE HERE TOMORROW. 
 
First thing you should do after visiting this site?  Find your State Support Group and Join, each State has one, go here    http://www.hs-usa.org/contacts/contacts.asp 
 
NEW.......FOR THE GUY'S
READ DAVE'S STORY
His advice and what it has been like for him being a man
with Hidradenitis Suppurativa!!!
                                      
Click on any underlined word to go to a website
or picture

     Hidradenitis has been a part of me for the past 26 years, I can't even remember what it was like without this disease, except when I dream.  But then another disease came along,  Fibromyalgia and that really played havoc on my entire system.  Neither of these would be given a name for me until  20+ years down the road

HIDRADENITIS IS NOT A

Rare Disease

Contagious Disease

 Disease Where Accutane Should Be A Choice of Treatment   

HIDRADENITIS IS HOWEVER A

Painful Disease

 Disease With No Known Cure

 Disease That You Did Nothing To Get

 Disease With 3 Stages

Disease That Can Progress

Disease That Can Rob Us Of Our Lives

*DISCLAIMER*   

   I am not a doctor/nurse, please take caution in using herbal remedies and discuss with your own health practitioner anything you would like to try or add to your daily healthcare that you find listed here.  

My Prayer to all sufferers of any disease is for comfort, comfort from the pain, but especially from the world we have to face each day as we go to work.  For they do not know what we sacrifice to get there, and they do not care.  But we know what we sacrifice and we care, and our bodies pay the price for it, and our families take the toll for it, because how long can we live and work like this?  
Lynette

 

Check Back Weekly as I make updates all the time.

Last update 01/09/07


 


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